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Frequently Asked Questions (FAQ)

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What exactly is Alzheimer’s disease?
According to the Alzheimer’s Foundation of America, Alzheimer’s disease is defined as a “progressive, degenerative disorder that attacks the brain’s nerve cells, or neurons, resulting in loss of memory, thinking and language skills, and behavioral changes”. Among those 65 or older, Alzheimer’s is the most common cause for the loss of intellectual function.

How is Alzheimer’s diagnosed and is there a cure?
Alzheimer’s disease can now be diagnosed with up to 90 percent accuracy. Neuropsychological tests are performed that gauge memory, attention, problem-solving abilities and language skills. Symptoms are much easier to manage when diagnosis is made in the early stages. Unfortunately there is currently no known cure although research in this field is ongoing.

How is dementia different from Alzheimer’s?
Dementia is a clinical state characterized by the loss of function in several cognitive domains. It is a general term used to describe groups of symptoms such as loss of memory, judgment, complex motor skills and language. Many major disorders such as Alzheimer’s cause dementia. Several other diseases can also cause dementia, such as Parkinson’s, Creutzfeldt-Jakob, Huntington’s and multi-infarct or vascular disease, caused by multiple strokes in the brain. Accurate diagnosis is critical since dementia may also be caused by thyroid problems or vitamin deficiencies. Unlike Alzheimer’s, these conditions may be reversible.

How is Alzheimer’s treated?
No treatment is yet available to stop or reverse the onset of Alzheimer’s disease. However, certain medications such as Cognex®, Aricept®, Exelon®, or Reminyl® can delay symptoms for a limited time for patients in the early to middle stages. There are also medicines available to help control behavioral symptoms such as sleeplessness, anxiety, depression, and agitation. Here at Stafford Hill Assisted Living, we understand the unique needs that accompany memory impairment and we are able to meet these needs with a supportive and safe living environment in our Generations Program. We engage our residents in activities that evoke familiarity and comfort to minimize adverse symptoms. The Generations Program is adapted to each resident’s needs. We use methods such as art, cooking or music therapy to stimulate the resident’s creativity and senses, or tasks such as setting the table, to empower the individual. We also incorporate hobbies the resident may have previously enjoyed. These methods have been found to greatly aid in maintaining independence for those with Alzheimer’s. Our goal is to help each resident live with the highest possible level of independence and comfort.

What are some of the symptoms or warning signs?
Alzheimer’s is both a progressive and variable disease. Symptoms advance slowly but at different rates and patterns and will differ for each individual. The appearance of behavioral changes will be based on the particular way the individual is affected as well as the advancement of the disease. In the early stages, individuals may experience mild forgetfulness. As the disease progresses, simple tasks such as brushing one’s teeth may be forgotten.

The ADEAR (Alzheimer’s Disease Education and Referral Center) and the National Institute on Aging offer the following warning signs of the disease. However, even if an individual has several of these signs they may not have Alzheimer’s and should be thoroughly examined by a medical specialist trained in memory care.

Common Indicators of Alzheimer’s Disease

  • Asking the same question repeatedly
  • Repeating the same story, word for word, again and again
  • Forgetting how to cook, make simple repairs, play cards – activities that were previously performed with ease and regularity
  • Losing one's ability to pay bills or balance one's checkbook
  • Getting lost in familiar surroundings, or misplacing household objects
  • Neglecting to bathe, or wearing the same clothes over and over again, while insisting that they have taken a bath or that their clothes are still clean
  • Relying on someone else, such as a spouse, to make decisions or answer questions they previously would have handled themselves
  • A noticeable change in mood, personality or behavior
  • Difficulties with abstract thinking, taking the initiative, or finding the right words to express themselves
  • Disorientation of time and place

Where can I find more information about Alzheimer’s and related support groups?
There are many resources available to find more information about Alzheimer’s. Locally, there is the Alzheimer’s Services of Cape Cod and the Islands (www.alzcapecod.org) and the Alzheimer’s Association – Massachusetts Chapter (www.alzmass.org). The Alzheimer’s Foundation of America (www.alzfdn.org), Alzheimer’s Association (www.alz.org) and the Alzheimer’s Disease Education and Referral Center (ADEAR) (www.alzheimers.org) provide in depth information about the disease. Both the National Institute on Aging and The National Institute of Neurological Disorders and Stroke (www.ninds.nih.gov) also provide updates concerning the progress of medical advancements and research.

There are many support groups specifically developed to help either individuals with Alzheimer’s disease or those affected by a loved one with the disease. State and county agencies are a good source to locate groups in your area. The Alzheimer’s Association (www.alz.org) also offers local support groups through a network of chapters nationwide. At Stafford Hill, The Generations Program will provide the support and care needed for you and your loved one. Regular support group meetings will be conducted on-site guided by trained professionals. You may also contact our office and we will be happy to provide you with additional information and resources on these topics.

What are some of the common emotions that family members and caregivers may experience?
According to the Alzheimer’s Association, approximately one in 10 families has a relative with Alzheimer’s disease. Because of the nature of the disease, it is often extremely challenging for families. Once an individual is diagnosed, their decline is unpredictable and slow, lasting on average for a decade. It can be overwhelming, especially as the disease progresses requiring extreme patience, compassion, and understanding. Many family members experience negative feelings toward the situation, frustration, and denial. It can also cause feelings of fear, anger, sadness and confusion. The key for family members is to focus on the things that the individual can still do and not on what is lost. Keeping a positive attitude helps both the family members and the diagnosed individual. Maintain open communication and avoid directing negative feelings from the situation towards family members. Always remember that there are support services readily available to provide guidance and assistance in any way.

Families must educate themselves about the disease and find the right support and assistance. Long-term questions, such as personal, legal, and financial issues should be addressed as soon as possible. Ideally, responsibilities should also be divided among family members according to each member’s preferences, abilities, and resources so as to minimize possible future conflicts.

How do I know when it’s time to seek help for the care of my loved one?
The physical and mental health of the caregiver is perhaps one of the most important factors in determining when additional assistance is needed. A study of elderly spouse caregivers, aged 66 to 96, found that caregivers who experience mental or emotional strain have a 63 percent higher risk of dying than non-caregivers. Too often caregivers focus their energy on their relative’s needs and loose sight of their own wellbeing.

Below is a basic caregiver questionnaire to help assess your need for assistance:

Recently I have…

felt I can’t leave my relative alone
felt completely overwhelmed and stressed
often felt pulled between family and work responsibilities
experienced back pain, headaches, stomach problems or sleep disturbances
been irritable and have had crying spells
trouble focusing on my regular tasks and have difficulty making decisions
felt lonely and often angry at my relative for changing
often felt a loss of personal time and privacy
been unhappy with the support the rest of my family is giving me
noticed that the current living arrangement is not convenient for my relative’s needed medical care

If you answered “yes” to six or more questions, consider visiting your physician to ensure your wellbeing. Investigate area caregiver support groups and fully access all care options available for your loved one. Please contact Stafford Hill Assisted Living to learn more about how we can be of assistance with the Generations Program. Keep in mind we also offer short-term respite care.

For more information, please contact Stafford Hill Assisted Living at
(508) 830.9990.

Sources:
Alzheimer’s Association
Alzheimer’s Disease Education & Referral Center (ADEAR)
National Institute for Aging
Alzheimer’s Foundation of America
Mayo Clinic

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